update

I dislike colds!! BLEEHHH!!!



My baby looks like she is having a baby!




So we talked to the GI doctor yesterday evening. After talking to a few other doctors including Kylie's cardiologist, they believe that the most likely source of the fluid in Kylie's belly is chylous sp drainage ( fat draining from the lymph nodes ). This is a complication we had with Kylie's first surgery, but it happened A LOT sooner post op and was in her chest not her belly. So if that is what is going on we have to figure out why this is happening so long after surgery and how it is getting all the way down to her belly. Don't get me wrong, it is a good thing that it is going to her belly. This could be a lot worse if this were sitting in her chest like the first time, she would be having a hard time breathing. I just don't know how it is ending up in her belly. Anyway the plan at this point is to drain the fluid off her belly and send that for testing to see if it is the chylous drainage or if is something else. If that doesn't give us any answers we may still have to do the liver biopsy, but we are hoping to avoid that. So U of M will call us on Monday and set up an appointment time to do this. My daughter doesn't know the meaning of the word ORDINARY! And to top it off she is fighting a small cold as well. Can anyone saw insult to injury.